Friday, November 20, 2009

Booby Trap

I went for my annual screening mammogram on the very day that new guidelines were announced. According to the revision, I don't have to have the test done until age 50 and then only every other year. I choose to ignore this suggestion and continue doing what I've been doing as long as my insurance company continues to pay for it. It is my personal belief that women with MS have a responsibility to be vigilant about routine testing. Our disease brings enough uncertainty and I like the peace of mind knowing that nothing else is wrong. So, I am willing to deal with the awkwardness and discomfort of getting a mammogram.

You expect that the medical community would be better equipped to interact with the disabled than they actually are. The following scenario happened to me the first time I went for a screening.

    Tech: Miss Mayo, could you come with me?

I follow the tech in my wheelchair, my aide pushing me. I am handed a gown and given the instructions to put it on with the opening in the front. The tech returns several minutes later.

    Tech: Can you leave the wheelchair over in the corner there and stand here by the machine?

    Me: No, I can't stand, let alone walk.

    Tech: Well, I don't know how we are going to be able to do this.

    Me: I'm going to have my aide wheel me over to the machine and you're going to lower it down.

    Tech: I'm not sure that it goes that low.

    Me: There's only one way to find out.

    Tech: Is there any way that you can raise up the chair?

    Me (inner voice): Sure, I have a magical, levitating chair just like Dr. Xavier in X-Men. Me (audible): No, it doesn't.

    Tech: And you can't stand for even a minute?

    Me: That would take a miracle since I am a paraplegic.

Somehow, we are able to get the films that we need although the tech keeps bumping my knees into the machine while adjusting me. My aide also gets to don a lead apron so that I can remain pressed into the machine as it squishes me. I wait for the films to be read while I'm there in case anything needs to be retaken. It's a better use of time for me to wait around vs. having to return another day and do it all over again.

As unpleasant and ridiculous as that experience was, I like to think that I might have made it better for the next person in a wheelchair who has a mammogram done at that facility. I guess I appreciate that people give me the benefit of the doubt and think I have more mobility that I actually do, but I wish they would assume the worst and not make me feel bad when I can't stand or even move my legs. After all, I'm actually not trying to be difficult for a change. Stubborn, disabled people like me must keep challenging the medical community to provide us with the same care as the bipeds. I know that as our population ages, there'll be a lot more people with mobility impairments. Until then, I will continue to earn the nickname, "hell on wheels."



Lisa said...

In 2006, Laura Lawes was diagnosed with Multiple Scelrosis and given a life expectancy of one year. Three years later, she was not only living strong, but she gave birth to her first son. It was called "a miracle birth". These miracles are possible today, because of the work organizations, such as yourself, have done. Here, at (a website dedicated to disease preventions and treatments) we are inspired by stories such as this, and would like to join you in fighting this cause. If you could, please list us as a resource or host our social book mark button, it would be much appreciated. Lets create more of these miracles; together.If you want more information on that please email me back with the subject line as your URL.

sherry said...

Dear Lyndia

Also with progressive MS. Diagnosed 10/2007, but believe I have had it since about 1992.

Thank you for your blog. Have read everything available for viewing and have enjoyed your humor, frustration and determination.

In the process of trying to get on Medicaid then file for my disability. I'm 58 and could use your help with your experience.

Thanks so much. I'm hanging in there with you ;-).